BOSTON (WWLP) — Wednesday is
Cystic Fibrosis Awareness Day. A western Massachusetts hospital is being recognized for their work in Cystic Fibrosis at the State House.
Cystic Fibrosis is a life threatening genetic lung disease that clogs the body with mucus and causes respiratory infections.
It affects more than
800 people in
30,000 people in the
70,000 peopleworldwide. Health advocates say Massachusetts has eight Cystic Fibrosis care centers that provide treatment to help extend the lives of those living with the disease.
According to Bob Coughlin, CEO of MassBio, “So the folks from Baystate Medical Center, that run the Cystic Fibrosis clinic, that play a major role in the lives of those families and patients out there in the western Mass. and surrounding area received a proclamation from the House of Representatives today.”
People with Cystic Fibrosis pay about
$80,000 annually in medical expenses.
Health advocates are asking state lawmakers to protect people with state health insurance who have rare, expensive diseases from high out-of-pocket costs.
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